Saturday, May 28, 2016

Our scary run in with malaria




I helped nurse my dad when he had an unusual strain over malaria and was so incredibly ill we wondered whether he’d make it through it at times.
It’s a horrible disease and makes you so sick 

And I knew in my head it was deadly especially to children – rob would tell me countless times of the children who would die from malaria that he was treating at hospital.

But I think somewhere in the back of my mind I wondered how so many children could die from it when treatment was available.
Well now I know. 



Hezekiah went from appearing to have a little bit of a cold – to an extremely high fever, extremely dehydrated – constantly vomiting and having extreme diarrhea all in a matter of hours.

To say it was scary how quickly he went down is an understatement.

When Hezekiah started to show signs of a cold, I already had a flu, so suspected he had the same….. I said to Rob lets go back home  ( we were in city to meet with the lawyers etc)….. when your unwell you just want to be in your own environment.

The main reason we were going home was cause I wasn’t feeling great – but by the time we got home and had only been there an hour or so it was very clear Hezekiah was not well at all.


Being that the town we live in is limited in resources and the hospital very old, we either could take him to that or Rob could treat him at home where we at least could be sure it was clean, and where we could stay together the three of us (hospitals are crowded here so no room for mum and dad to really sleep by a child’s bed)


It was clear he was too sick to travel back to the city.

So thankfully Rob was able to run around and pool the resources needed to set up Hezekiah on iv line and treatment, needles, feeding tube and everything he may need.

We had our own little hospital in our little house.

We didn’t leave his side for those first few days – he’s fever was terrible and we were scared for him. 



He had all the symptoms of a child who would not make it through. 
Rob said he lost many children just like Hezekiah


I started to understand how so many children die from malaria.



Children take a long time usually to show they are unwell – and by the time they do with malaria it is urgent.



If you live in a village – or have limited money – these challenges are going to greatly increase the risk that your child would not make it.

By the time you realize your child is sick, you are on borrowed time to get them treatment, some if caught really early will respond well to oral medications, but if you have a child who seems themselves and may just appear to have a cold for the first part of the disease ( like Hezekiah)….. by the time they show they are sick they need iv treatment.


People in villages or not near the resources, would then have to find money for transport, money for accommodation…. Money for medicines…. This all takes time and would often include the time it takes to sell a goat, or cow or something….. and the time ticks away….. meanwhile the malaria is progressing and your child is going downhill quickly…. By the time you do get to the hospital, you may have to wait…. Wait for a doctor in a hospital where they are limited…. Wait for the medications….. wait for a nurse… wait for them to find the resources needed for an iv line.


All the while the clock ticks and your child is now critical. 


To think that if we had waited even a few more hours… or a day….. or if we hadn’t been able to get the resources needed to stabilize him…….. scary….. and that’s the case for millions of families..


Not only in Uganda but all over the world where malaria still kills .



About 3.2 billion people – nearly half of the world's population – are at risk of malaria.

 In 2015, there were roughly 214 million malaria cases and an estimated 438 000 malaria deaths. Increased prevention and control measures have led to a 60% reduction in malaria mortality rates globally since 2000.

Sub-Saharan Africa (this includes UGANDA) continues to carry a disproportionately high share of the global malaria burden. In 2015, the region was home to 89% of malaria cases and 91% of malaria deaths.


In Uganda malaria is the leading cause of illness and is responsible for up to 40% of all outpatient visits, 25% of all hospital admissions, and 14% of all hospital deaths.

 Currently, 95% of our population is at risk,1 and malaria kills between 70,000 and 100,000 children every year.2 Uganda's high rates of malaria disproportionately affect young children and pregnant women in rural areas who experience extreme poverty, limited access to healthcare services, and lack of education.

 Malaria has negative health and economic effects, and restricts the productivity of our population…..



I have had so many people say they didn’t realize how deadly malaria was – and just what it can do.

We sleep under nets and try and use as much protection on Hezekiah and myself as possible.

People that have lived here a long time or who are older eventually develop an immunity towards it, and if get it get a milder case. 


But children and pregnant women don’t have that immunity. ( pregnancy lowers immunity)

I pray that Hezekiah and I develop a strong immune sytem and immunity towards it quickly.

Sadly Mozzies seem to like me…. And Hezekiah seems to have taken after mummy and not daddy in that regard.








I AM SO INCREDIBLY GRATEFUL THAT ROB IS SUCH AN AMAZING DR….. and for God’s healinG power.

Hezekiah spent almost 1 week critical…. 2 weeks extremely unwell and was back in hospital the second week when they discovered he had a bacterial infection and multiple virus’s as well.

And he was still vomiting and had diarhea at almost 3 weeks. 
Thankfully he now has stopped both of these in the last few days and is starting to gain his appetite back.

He has lost over 3 kgs and is weak but he will regain his strength as he improves. 


It was an incredibly scary ordeal – but has opened my eyes to understanding more of the health challenges here and just
 what malaria can do to children and how quickly.


We are so thankful to all those who prayed - especially in the middle of the night when we had to rush him to hospital in city after second ordeal. 
We thank you for the messages of support and a very special thank you to the person who sent us some extra money after God lead them to - this allowed us to cover all the extra expenses of medications and treatment AND TO BUY DISPOSABLE NAPPIES AND WIPES IN THE CITY - this was much easier and safer than having to hand wash over 10 dirty diarhea nappies everyday - in fact without them I'm not sure what we would have done as it was raining so cloth nappies would not have dried anyways! 
Thank you so much to everyone for their love and support! 






 





Thursday, May 5, 2016

Our home.... for the next few weeks at least.


I realised the other day we still hadn't put up any pictures of where we live - we have just been so busy travelling all over looking for land and going back and forth to Kampala to do paperwork for registration. 
We are incredibly thankful for our new friends who we met through looking for land - they are a godly christian couple who just happe to have a spare little boys quarters ( like granny flat) so we have been saving money by staying there when in the city  - and HIlda is a great cook too :) 

But here are some photos of our little house in Mityana where we live..
Its a smallish town - very basic.
We lose power most days but thankfully not as much as Lira town where we lived before and we havent lost water once :) 

We live in a compound - there is three other homes but they are all under construction and we are the other tenants - there is one other beautiful old JAJA ( grandmother) who lives in the compound who is the landlord's mother and is caring for the place until all the construction is done.
Her mentally handicapped daughter is also with her and she is lovely.
Jaja loves us being there and loves hezekiah and crys when we talk about the fact we are only there for a few months. 
She brings us yummy fresh food from her village and her farm..... and she is so funy.... constantly trying to find rob a job locally and trying to convince her kids ( the landlords) to lower the price of rent so we stay :) 

We only have a few weeks left here but we have enjoyed our time in this place but its not somewhere we would live long term - feel like we are in a bit of a prison in this compound and so noisey and on a very busy road!! 

We have no furniture so still living very basic as we made decision it would be too difficult to move things - rob is currently working on a dining table at least though so that will be helpful with meal times - :) 

Dinner time on the floor :)  
Ours is the one with the gate open - the rest are all still under construction - the construction work is noisy and not always safest place for baby - but ziah loves the work men and they love making him laugh as they work ....

You can see big black bags in front of our house - thats just some of the washing waiting to be washed after we try and kill bedbugs in the sun  


OUr bed and ziah's tent...we now have a mosquito tent up around us and ziah sleeps with us as his little tent is too humid and hot 

We have a flush toilet - no shower and no hot water just a wash area and tap but its good - thankfully ziah loves cold baths ;


Our living area - and where we eat and everything else 




hand washing is much more difficult with a baby - so we now do it outside in the compound where ziah can at least play in another bucket of water.
He loves to suck the wet clothes ?????? 

ZIah trying to help daddy cut wood for furniture 


The endless weeks spent washing and cleaning our things from storage that had bed bugs in it - meant this little man spent a lot of his jetlag on mummys back 

Rob getting jackfruit ready for us to eat.... courtesy of the JAJA who lives in our compound... 

Ziah loves the avocados here!!









Hezzy enjoys an outdoor bath most days



We found one little motel in town that has cold drinks and grass!!! So ziah enjoys giong there every now and then to crawl on grass 


Photos from our travels looking at land



I thought I might share some photos I've taken lately on some of the MANY day trips we've had to look at land. 
We have seen so many places its hard to keep track of them all. 
The search continues but we know God has the perfect place for us. 
In the mean time we are making precious memories as a family and with our friends who help us look. 
This includes me and rob re experiencing some of the things that make Uganda so special and Hezekiah getting to experience them for the first time.... like being inside a car and pulling up in town and feeling like your in a zoo as everyone tries to see who is inside the car :) 
So I've put a collection of photos for you to enjoy from our most recent days looking for land. 
These photos are from various places but are common sites all over Uganda. 
Women cooking bananas ready to give to people selling to cars going by

When a bus, or taxi, or private car go through a town they can stop and out of nowhere people come running with various food, snacks and drinks.... they have made special holders so they can lift things up to the really tall buses.... or on some occassions people will just hang right out the bus.... the people selling food will run alongside the buses etc to catch their money if bus leaves before they've got it :) ..... you really have to experience it to fully understand.... if your in a car lower to ground its a crazy... overwhelming feeling with the car completely swarmed by people trying to sell you snacks etc.... especially when they realise a mzungu is in the car... and even more so when they realise a bi-racial baby is in the car....
We have had some HILARIOUS conversations with the women that swarm our car when they realise a local man is married to a westerner :) ..... I wish we had a go pro so you could really get a sense of what this is like 






A man squished on a bike with Matoke - or green bananas.... i am constantly amazed at boda boda riders and how they can balance such heavy things or so many people on their likes. 

This taxi was OVER FULL... and I mean over full with people and luggage.... but overcrowded is not in the ugandan vocabulary..... so lets try ad squish even more luggage and people in .... this is usually us..... squished inside there too - but we dont have to do this as often now we have a car! Thank you GOD!

Bananas for sale :) 

Meat on a stick anybody for take away..... this is one of the snacks I haven't tried ;)

Mine and hezekiah's favourite roadside snack - Gonja.... roasted plaintain bananas

Some of the precious children we desire to help who are living on the streets

A local little restaurant inside that blue door - women cleaning and preparing out the front.  


That little store in the middle has chappatis 

roadside shop 



These women can carry anything on their heads! And I mean anything..

Washing bays like this are common to find next to a swamp or water source... you park your car and men will wash and clean your car with the local water. Not uncommon to see young boys working here and taking their baths at same time. 

Wednesday, May 4, 2016

HEZEKIAH turns ONE!!

 Cannot believe our little miracle baby has turned one - where has the last year gone!

7 months of it were spent with Hezekiah and I battling health issues and medication withdrawals....trying to get him to gain weight and progress... they were also filled with joy having family and friends around us in Australia...
.
And then at 9 months bought us going to USA for a month to meet Rob's sponsors...

And then at 10 months we arrived home to Uganda.

And then the last two months have been spent busy travelling all over Uganda looking for land and processing paper work for the organisation - so so busy

Due to the fact we are still have to remain in the city for appointments with our lawyers re registration - Hezekiah's birthday was spent in the city and not in our home.
We are continuing to stay with friends there.

Rob and I found something we wanted to give hezekiah but was so expensive so we are currently making our own for him - it should have been finished but because we ended up in city for his birthday he will get it when home.
Thankfully two little gifts from Australia came -
He loved waking up to the 4 balloons we had and a two little presents.

I decorated some plain cakes I managed to find at supermarket since we don't have cooking facilities - and I think it turned out pretty well  - a SIMBA... or LION
We searched all over for a place to have lunch with some friends where the kids could play that wasn't too expensive.
Thankfully we found an amazing little place that we never had heard of that had a sandpit and toys so Ziah and the three other boys had lots of fun. The three other boys hadn't played on playground like it before so aunty leah was showing them what to do

The food was nice and we had a relaxed time celebrating our precious miracles first year of life.
There are some more photos from Hezekiah's birthday in the link below.

Here's a little bit I wrote in Hezekiah's baby book about his first birthday

HEZEKIAH JABARI SITUMA MAKANDA
 - YOU ARE ONE TODAY

YOU CAN NOW - Talk multiple words, you can even speak a few words in three different languages You can also already put two or three words together - Thank you Dada.... Bless you :) 
You can do the actions to happy and you know it, the wheels on the bus, heads and shoulders ( you can even roll your hands around and around) 
You have just started taking steps - you can currently take 6 on your first birthday. 

YOU LOVE - people, cuddles, tickles,  family,  music, spoons, anything circle shaped, switches/buttons and handles, books, elephants, lions, banana's, avocado and all fruits, you love skyping and seeing family on the computer and cry when they are gone...

DEAR HEZEKIAH, Hezzy, Ziah, Tiger, Kiah....

 A year ago today the baby my Dr's said would never happen drew their first breath. 
The gift and miracle that our incredible God blessed us with. .... was YOU!
Through the miraculous pregnancy... All the time we nearly lost you... more times than people know...... you held on.
I will never forget the moment I first heard you cry and knew you were finally here in our arms.... 
Those first few weeks...months were full of so many challenges... Ill never forget the moment your body went limp in your daddy's hands and you were unresponsive ... or your high pitch cry as your body went through withdrawals.... or the moments when you would defy the odds again and again. Your pain tolerance is so high - Doctors couldn't believe what you'd cope with or how well you handled everything. 

Hezekiah Jabari Situma Makanda.
What a joy bringer you are my darling boy.
When we named you we had no idea just how much you would live up to your name even before u took your first breath.
You certainly were and are strengthened by God and you are courageous and brave and you already point people to a miracle working God just like your name declares.
You are such a happy baby .. you love people and music... and you are already so intelligent like your daddy ... already speaking in multiple languages and spending time working out how things work. You will sit for ages playing with circle shapes on cement, or working how a switch goes... or even working out how to wiggle the gate lock back and forth enough to get out the front gate...
 And you already love to talk just like your mama ... 

You already have a sensitive heart and know the people who need cheering up - you crawl up to them or give them an extra big smile .
 Whether a lonely old lady or a hungry little child on the street.
You already see people and draw them in and bring light to people. 

You are our absolute delight ziah.... Our little Hezzy... Small in size but mighty in strength and character and personality.
Today we celebrate you and the joy you bring to ours lives.... And to all those around you. You are so incredibly loved - you should see all the birthday messages for you from people all over the world.
We also celebrate the incredible God who blessed us with the miracle of you.
Your life has strengthened our faith and we will never question if miracles exist again.

And we speak over your life the words of what is written in the bible about King Hezekiah - This is our prayer for you on your first birthday our darling boy for as your grow...

" Hezekiah did what was right in the eyes of the Lord... Hezekiah trusted in the Lord, the God of Israel. There was no one like him among all the Kings before or after. He held fast to the Lord and DID NOT stop following him; he kept the Lords commands He had given. And the Lord was with him, he was successful in whatever he undertook". 2 Kings 18 


Mummy and papa adore u and love you.
Happy 1st birthday our joyful boy.



TO SEE MORE PHOTOS OF HEZEKIAHS FIRST BIRTHDAY JUST FOLLOW THE LINK.