We have been apart for 4months now.
And it's been 3 months since my surgery.
The surgery and recovery time was a lot more extensive than they are originally thought.
I am so so thankful for amazing doctors who didn't give up to work out what was going on.
I had 4 abdominal hernias. Every sort you can have.
They think it was caused by some weakness in abdomen from bone Graft surgery when young.
The specialist said it was a blessing we came home as the next stage would have been strangulation of intestines.
After 6 weeks recovery they were hoping that I would at least have had some improvement in pain.
But I sadly didn't.
After a bunch of other specialists and tests they came back to me saying they believed I had fibromyalgia.
But a bit of a different case because I didn't present with a lot of the common signs.
They believe I have probably had this for long time but some of the symptoms are similar to my syndrome Mc Cune Albright syndrome.
Specialists in past have mentioned it but never investigated it as treatment etc was fairly similar to what I'm already on.
They think the hernias have caused nerve damage and because of the fibromyalgia - my nerves are having a hard time regeneratin or something like that.
Which makes so much sense how I have healed after all my surgeries in past.
My specialists have been amazing and told me I should be teaching others about pain management because people with less than I have are usually pretty bed ridden.
They said I had good attitude - I responded with - NO I HAVE JESUS :)
They laughed and said maybe that's it !
They said all they know is that despite my tests results and how my body is responding to pain my mind doesn't seem to be as affected by it which is a miracle.
They also said it was unheard of and a amazing to get of OxyContin after all the time I've been on it and to be able to do it in Uganda.
They said its amazing - I said no its a miracle..... One dr said - well it certainly looks that way.
Sooooooo
Because although I am still having the pain they have fixed surgically all they can - with some persuasion they have cleared me to fly home!
I have been doing some treatments and therapies and trialling some things they have recommended in the weeks gone and will take back with me.
I am believing I will be completely healed and won't allow the pain to overcome me.
I have lived with pain my whole life - and now knowing what surgically and everything is ok I am at peace about going.
Most people would be depressed when dr diagnoses you with ANOTHER Rare, complicated condition with no real treatment.
But not me..... Drs said - I'm sorry there's nothing more we can do.
My response was that ok- there's heaps more God can do.
Despite my drs not necessarily agreeing they did encourage me in my faith.
So as of yesterday I have booked my flight home.
Saturday 24th may I fly out.
2 weeks!!!!
2 weeks till my beloved and I are reunited. Just shy of 5 months apart and just in time for our 1st wedding anniversary.
Lots of treatments and catch ups before I go but I am so incredibly excited.
I am finally allowing myself to realise how much I have missed Uganda and my husband.
Instead of trying not to think about it now that I have a date. I can't wait for the day to come!
Thank you everyone for your support !
